What is BFS?

 Common Questions


 Answers

What does BFS stand for?

Benign Fasciculation Syndrome

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What are the symptoms of BFS?

Benign Fasciculation Syndrome can most succintly be described as a hyperexcitability of the neuromuscular system. BFS has a variety of symptoms, including (but not limited to) frequent muscle twitches, muscle cramping, easy muscle fatigue, muscle aches and a "stiff" feeling, shakiness (tremors), and exercise intolerance. BFS sufferers often have a wide range of sensory symptoms as well, including (but not limited to) feelings of numbness, pins and needles sensations, itchiness, perceived weakness, "buzzing", globus sensations and hot/cold sensations.

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Should I be worried?

Absolutely not. BFS is a benign condition and will NOT progress to a dangerous condition nor does any dangerous condition present itself like BFS does.

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Is there a cure?

There is no known cure-all for BFS. BFS sufferers have found the best treatment is getting control of their anxiety. Anxiety can worsen your BFS.

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Is it normal that my twitches are (in X location/occuring at X frequency/seem to occur even when not at rest/are not visible/etc?)

Yes, this is absolutely normal. Your twitches do not have to follow any particular pattern to be benign. In BFS they are always benign.

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My doctor says I'm fine but they didn't say it was BFS or they simply called it "Benign Fasciculations", is this still BFS?

Yes. Not every neuro references it by the same name or has considered it appropriate it to reference it as a syndrome because it is not considered dangerous or concerning. Labelling something that is common and benign in nature has much lower priority. :)

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What are the best resources for information about BFS? I read something and now I'm scared.

You're reading one of them now. Googling your symptoms will not return useful results in most situations. There are hundreds of websites out there that spider and replicate information with little concern to it's authenticity or usefulness in medical diagnosis (for example you could find thousands of conditions that may cause a common headache, but you don't automatically assume you have them just because you have a headache). It's the same with BFS symptoms. Your neurologist is trained to follow a strict procedure for diagnosing these things, and I assure you Google is not one of the steps.

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But is there some official source I can read?

The best (and the only properly conducted and respected) study done on BFS was conducted by the Mayo Clinic. The study followed the medical history of 121 patients that were diagnosed with benign fasciculations for a range of 2-32 years after diagnosis. Not a single patient progressed to anything dangerous (confirming that BFS is in fact, a benign condition). You can read a summary here.

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